What do we want?
- Cheaper and faster access to data
- Research funds spent on common solutions
- Creation of additional databases
- Improved access to existing databases
- Elimination of legal bars against efficient registry research
- Better documentation systems
- Move registries into E-science
- Increased international collaboration
How?
- Legalize the creation of general purpose register-based databases
- Permit ethics committees to review database project proposals
- Fund only infrastructure projects that extend beyond individual research projects
- Pay only once for access to the same data
- Develop registries with research in mind
- Provide the international community with access to Swedish registry data
- Facilitate access to international datasources
- Interoperability
- Accomplish a common ontology for research data
- Accomplish common technical solutions
Current activities within DISC:
- Microdata ONline Access (MONA)
- Swedish National Dataservice: (1) Humanities, Medicin and Social Science, SND HMS; (2) Climate and Environment (SND KM)
- Funding large databases
- Review of the legal system
- Developing new database solutions
For more information about DISC, contact Director, Magnus Stenbeck or Secretary, Kate Svensson.